Ashley and Whitney had medical appointments today. But this last week Ashley had her oral follow up, her Oncologist visit, labs, and... her immunizations. Whitney had her 5 year well child exam.
Ashley has been given a clean bill of health and her oncologist expects her to be fully recovered from her cancer and she'll live a normal life. She has graduated to 6 month CT's and Provider visits and just to make me feel comfortable, her oncologist said I can come in every 3 months for blood work i.e. AFP marker. Otherwise she really doen't need an AFP for every 6 months also. She's officially graduated from her cancer. Just 4 more years and she'll be considered "cured".
Her oral surgery a couple weeks ago went GREAT. Her two front teeth got caps and they put a sealant on her teeth to prevent cavities. She also had two small cavities filled on her second top teeth. They were small. At our dental follow up visit on Monday this week, the dentist wants her to change her diet and limit the starches. Startches turn into sugar and promote cavities. So dorito's, chips etc... out. Until she can brush (or we can brush) her teeth and really get in there, we have to control her diet, doctors orders. She should eat fruits, vegetables, protein. Limit juice to 6 oz a day and snacks should be of protein type like cheeses, beef jerky etc... All until we can really get in there and brush her teeth.
Both Whitney and Ashley got shots today. I'm amazed at these kids and their bravery. They did so well. 3 shots for each of them. It is a milestone as Ashley has not had any immunizations since January 2008 and was not allowed them due to her cancer. Now she is caught back up... Oncologists orders. So Ashley got Diphtheria, tetanus and pertussis, Haemophilus b, and pneumococcal conjugate. Whitney got chicken pox, MMR, and polio. Whitney officially doesn't need any immunizations till she's 11. YAHOO! Unless we decide she needs a flu shot.
Almost forgot. Ashley's AFP is 2.8. she's doing really well. The oncologist wants me to make sure I get a hearing test again, we're due and I'm hearing Ashley drop the "f" in the word Fish. It could be just normal, we'll have to find out.
April
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3 comments:
Hello to Nakta family,
My baby boy-Ishan is 4 & 1/2 month old, is diagnosed with hepatoblastoma 15 days ago. Me & my husband went thro' the same emotional rollercoaster what you have described. Its stage-3 (initially not resectable but it hasn't spread anywhere as per ct scan). we will have 2 rounds of chemo ( almost done with 1st round), then surgery and 4 more rounds of chemo. Chemo wasn't as bad as i thought but i am more worried about surgery and recovery. None the less " reoccurance" too. I will need more information from you guys since ashley is a survior. Can I email you when i have a question ? my email address is ; bhavitaparekh@yahoo.com. I live in portland, oregon. thanks a million for this blog. Bhavita
It is great to hear that your baby Ashley is on her way to a healthy life! The news organization that I work for, MDiTV.com, recently published a young woman's story that was afflicted with hepatoblastoma as a child (http://bit.ly/aGJUly). We received a lot of feedback on it, and through the dialogue that grew between the parents of children with the cancer it was realized they all sought a community where they could share their stories and experiences.
MDiTV is now building that community. Along with all the information a parent might seek on hepatoblastoma, we are compiling interviews with specialists and also gathering stories of hope and survival. I am writing in hope that you will be willing to share Ashley's story with us. Please let me know what you think. I can be reached via email at drew@mditv.org. Thank you and God bless.
Hi, my name is griselda my 11 month old grandson was diagnosed with hepatoblastoma stage 1. He has had surgery and is currently undergoing chemotheraphy we have mixed emotions, we are unsure what to expect my daughter(the babys mother) is 17 yrs old. We would like to see if we can contact you for any concerns or insight on this desease. email: aguirregriselda33@yahoo.com
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