Today was a... hum... I don't know kind of day. Ashley woke so early 5 am. She went to bed around 10:30. Poor baby must be tired. She vomited today around 9 am. A lot of vomit. A lot of beef jerkey. She LOVES Tony's homemade beef jerkey. The vomit wasn't green. She's so tired today. Numerous naps. She is only awake in about 2-3 hour stretches. She has been nursing in 30 minute increments. I'm drained. Drained of milk, drained of energy, just drained. I'm sleeping well but I'm drained. We called the oncologist today and again, they're not concerned about the vomiting unless its green. Whitney has been a CHAMP at school. She goes all by herself now and doesn't need mommy or daddy there. This is a big help for us.
I don't want to feed Ashley anything but water, oyster crackers and breastmilk. This seems to help her keep her food down. She did eat some Hershey's chocolate this afternoon when Tony stoked up an outdoor fire in the firepit and Whitney made smores. Ashley wouldn't eat the graham cracker... she gave it to the dog. Ashley wouldn't eat the marshmellow... she gave it to the dog. Ashley ate the chocolate. HA! Too bad Musashi. No chocolate for you. It seems as if Ashley is keeping the chocolate down. She's asleep right now. I don't know when she'll wake or when she'll be down for the night. I'm just going with the flow. For those of you who know me... going with the flow is not my style. I like to have a plan. Tony seems to be doing okay today. We find it hard to hold back tears sometimes. I try not to let it get the best of me. Thats all for now from me. Thank you to all of you for your kind thoughts and help. Bob and Sally Nakata... your the best grandparents in the world! You make us food, you mow our lawn, you clean our kitchen, you're there in the middle of the night if we need you. We so appreciate you.
Crystal Thomas, - your help seems like a full time job. I don't know where you get the time and energy to coordinate so many things for us. Thanks so much.
Remember to kiss your kids good night and tell them how much you love them. Squeeze them TIGHT! -- April
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6 comments:
Hang in there April--I know you can do it. I'm sure it's scary but you are coping so amazingly. Your blogs help keep our spirits up as well! We will all be here for you, anytime. And I agree with you--Crystal has been awesome! Hugs and happy thoughts, Mako and the boys
Hi Tony and April,
I have been praying for you and thinking of you each day. What a tough thing to face but you do have lots of support, well wishes and prayers being sent to you every hour of the day. Children's is the place to be. I remember having surgery there when I was in the first grade and they were great. I remember the girl that came around with a cart full oy toys and games that they let us choose from. For some strange reason I chose a cowboys and Indians coloring book. I didn't even play that. I took it home and it went to the top of the refrigerator and I never colored in it! Anyway, I'm sure you will have a great experience too. I will be praying for the doctors that they will be well rested and sharp and ready to do their best for your darling Ashley.
Love, Karen
We love you guys and will be praying every day. I am off to Sacramento for a training. I do not carry a laptop to four days of yoga, but hopefully can access something to check in online. If not, sincerest best of luck to your little angel in surgery. Wish I lived closer to you and could lend a hand. I will meditate and pray for a wonderful outcome and lots of good news and comfort. Miss you right now. The SwagFam
I try to imagine what this must be like for you and Tony and we just can't really know. You two are amazing parents and you will get through this. We are thinking of you & are here for you.
Hey now, I just do what comes naturally. Some people bake, some run errands, I send e-mail! It's the least I can do. You said you were told that accepting help and keeping communication open was good not only for you and your family, but also for everyone who cares about you. This is so true, and even though everyone wants to help you in any way they can, you're also helping US cope by letting us help and sharing your daily progress. So thank YOU, April! You have been so strong for Ashley, your family, and all of us, and you'll get through this trial even stronger for it! The sun is supposed to come out for you tomorrow, so I hope you all enjoy a warm and restful day together.
Nakata family, we are all here for you at Wells Fargo if you need anything at all. We are praying and sending our positive thoughts your way.
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