Today was just an okay day. We got good news in that Ashley's bloodwork indicated an elevated alpha protein indicative of "hepatomablastoma" cancer... (again if it is cancer as only the biopsy pathology results provide certainty).
Ashley has had several vommiting episodes today and seems very tired. She seems to want Mommy a lot. We've made 2 calls to the Oncologist/hemotologist and they begin to get concerned if the vomiting turns green. For now my gut thinks her vomiting is unrelated to the tumor. Rather that damn tumor is so big (6 cm or 3 in.) it pushes against her stomach. When she's lifted or any weight is pressed upon her belly in just the right place, extra pressure causes her to vomit. And if she's overeating (which she does each time she nurses in her sleep) it certainly causes some vomit. But its NOT GREEN! - A good sign.
The surgeon called tonight and we're scheduled for Surgery Friday morning around 11 am. We'll be admitted to Childrens.
We are so moved by the outpouring of support for our family. So many of you are organizing food, childcare and just good thoughts! We need this so much and it means so much to hear your blog posts. Keep posting. We'll keep posting too. We love our baby so much.
April
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7 comments:
Poor little girl. I'm sorry to hear she's not feeling well. We'll be thinking about you all week and especially on Friday. Stay strong... We love your baby, too!
Sorry Ashley isn't feeling well. Hope you all are able to get some rest and recover from your long, emotional day yesterday. Continuing to think of you...
Please know that we are praying for healing, comfort and peace for Ashley and you all. I'm sure Ashley knows she is loved beyond words. You're in good hands at Children's so rest assured in the docs and staff there.
With love,
Renie, Curt, Davis & Julia
Please know that you are in our prayers. Children's is an incredible facility & it sounds like Ashley is in good hands. Sending positive thoughts & well wishes your way! Know that we are here to help in any way that we can. Love you!
Tony & April,
I'll keep you in my thoughts while gone over the next week. I wish I could be there for this friday and weekend. Keep shooting me emails and questions. I'll stay in touch. One of the best positives of this experience is experiencing the love and support around you. That leaves a lasting impression on our hearts and is such a great thing. I have many memories that cause my heart to get all soft and it's pretty cool. I wish you guys the best in these upcoming days.
Greg
April - we sure miss you two at school! It sounds like circumstances are in your favor as far as treatment for Ashley - and Children's is the best place for her to be - they are great. Just wanted to let you know that you and your family are in my thoughts daily and I wish all the best for getting little Ashley well! Please let me know if we can help out with playdates for Whitney.
Miriam & Melissa
Tony and April,
We are shocked to learn what is happening to your family. I am so sorry that you have to go through this with your precious baby girl. But PLEASE remember that we are thinking of you and the whole Nakata family is behind you! I know it is a very difficult time, but stay strong...you are going to make it through!
with much love,
Jerry, Yuka and Ktisti
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