At our blood work appt today we didn't need a transfusion, yeah! The bad news is Ashley's ANC (Absolute Nutrifil Counts - the first line of defense against potentially fatal illnesses) is still really low. On Tuesday is was 10 and today its just 15. Anything below 200 and if she gets a fever means we have 1 hour to get her to the ER. We were hoping she was above this danger zone today but she's not. Our dog (Musashi) has been staying with Grandma and Grandpa until Ashley's ANC is better. Any slight germ could make Ashley really sick. This means that not only does Ashley need to be careful, but Whitney's social life is very affected. Whitney can't be around anyone who has even the slightest cold for she could bring it home to Ashley. Because Ashley's ANC number is so low, they might delay her next chemo treatment. Her ANC has to be at least 1000 before they'll do chemo again. We were tentatively scheduled for Chemo on Wed the 18th but it will likely be delayed. We find out for sure on her Tuesday blood work appt.
We thought she was back to normal and she is with the exception of that ANC number. Her coloring is great and energy level is normal. She runs around the kitchen island and wants people to chase her. She went for a walk on the Burke-Gillman trail and went for a boat ride last night. That was great! Both Ashley and Whitney love Daddy's big boat (its a small boat but they think its big).
Did I mention her hair is starting to fall out? And she had her first bloody nose. All side effects of chemo. Nothing to worry about, just normal (sigh). Oh and we need a little nutrition help. Ashley still gets 90% of her calorie intake from breastmilk. She doesn't like much of any solids. If anyone has any good nutrition tips, we could use them. She doesn't even like juice. I can get her to eat chocolate chips, and a few other type of carbs like cheeto's but man... its difficult. Her weight is still stuck in the range of 10.2 kilos (22.4 lbs). This was the weight she was at before her liver surgery on May 16th. She's been at this weight since Jan 31, 2008. The tumor weighed about 1/2 pound so she's put some weight back on but we need more weight. She's been stuck between 10.4 and 10.2 kilo's for a while now. I don't want to scare you about her weight and must add that she began walking round Jan 31st so her activity could cause her weight to level out, however she should be putting on more weight now. - April