Saturday, May 31, 2008

Roller Coaster Ride

This is definitely a roller coaster ride; One hour things are normal, the next... major vomiting. Its so hard to watch her be sick. It makes me cry. It makes Tony cry. She wants to eat so bad but can't keep it down. We give her anti nausa meds but we have to force them into her mouth. She screams and we're holding her down. It takes a minimum of two people to give her meds. She spits them out also. We have no idea how much she's injesting. I saw a 14.5 month old at the Chemo clinic with Lukemia. She had a feeding tube. The grandma and grandpa bring her to chemo clinic. They told me the feeding tube is a blessing and that if we could get one, get it sooner rather than later. It makes it easier to give anti nausa meds. I don't know... a feeding tube just sounds so invasive to me. It seems if she needs a feeding tube that its a step backwards. I feel the same about blood transfusions. I don't want her to have to do either. It just makes me feel like she's getting worse not better. I know I'm wrong and that both are just par for the course, but man... It just isn't right to do this to a little baby.

Hopefully tomorrow is better. Oh and Musashi had a pretty large seizure today. We're taking her to the vet. She probably has Epilepsy (i'll check the spelling later). - April

1 comment:

bhavita said...

Hey,
I just wanted to say thank you for creating this blog. Our journey is about to end ( I hope your read my previous comment), would love to chat with you guys if I could. God Bless Ashley.

Bhavita.